Video Transcript - Parent Tips

Speaker 1

“So you have a child with special needs. First thing to remember is you’re the expert. Don’t forget that. You know your child better than anyone else. As you go through the educational system, working with all different experts who will be giving their opinion, but don’t forget that you know your child best. It’s going to be hard. You are there, up to your elbows in the trenches day after day. You know your child’s idiosyncrasies better than anybody else. And don’t forget that.”

Speaker 2

“So if we had advice to give to other parents I would say just find the joy. You know, let your kids have a childhood and have fun as a family because they’re what’s most important.”

Speaker 3

“The most helpful thing that works for me when working with teachers is setting up a communication system that works for you. Whether it’s face-to-face meetings, e-mail, monthly meetings, whatever works for you to have that clear communication to help your child achieve and make sure that problems are addressed in a timely manner.”

Speaker 4

“For us, the benefits that we have received from our involvement at the school and knowing the school administration, knowing the school staff, knowing the teachers and paraeducators in the classroom has been a tremendous benefit for our family and for my son. So I would recommend getting involved at your child’s school.”

Speaker 5

“A tip that I would share is to first get your emotions in check. There’s a lot of books out there that talk about from emotions to advocacy that are very very helpful. Make sure your family is on board with you and if they aren’t get The Arc and then go in with an open mind because they’re all in this with you. You’re not alone.”

Speaker 6

“Sometimes it can be really hard to listen to all the different people talk about your child. And sometimes it’s in what feels like a negative way. It’s really important to remember not to become defensive and that everyone is there to support your child.”

Speakers 7 & 8

Woman: “Our best advice to young parents is to keep a log book.” 

Man: “Any time we spoke to anyone involved in Alex’s life, we documented it. Helped us keep track of dates and times and promises and just helped keep his life straight.”